February 2018 Lewy Digest

Quote of the Month:
“Being deeply loved by someone gives you strength, while loving someone deeply gives you courage.”


Month of Courage

For the month of February, we chose the theme of courage. Courage comes in so many different packages it’s easy to forget what courage means. Courage isn’t always about doing, its also about not doing. Courage isn't always large acts that impact a nation. Courage can be as small as getting out of bed in the morning to care for a loved one. Need not to forget that courage isn’t the absence of fear but the rather the judgment to evaluate the importance of something else. Courage is quiet. Courage is forgiving. Courage is fighting. Courage is helping. Courage lies in all of us and how we demonstrate it in front of others is what gives others the courage to spread it.

Spread courage by donating on the link to the left and give a little courage to someone in need today!

Courage Spotlight

LBDA would like to introduce you to Tru. We met Tru at a past convention and from the moment we met her, we knew she was warm and genuine. She taught us many things about life with Lewy. From coping strategies to what it feels like to have specific symptoms. She talked about how her family has adapted to her every changing condition. Her fight everyday to make the most out of living with a disease no one can treat is a remarkable act of undeniable courage. Waking up every day with purpose and the willingness to help other takes a tremendous amount of courage To be so forthcoming and honest with such a personal condition with us remarkable. To be so forthcoming and honest about such an intimate and hard indisposition. We wanted to feature her and her blog because of she is a "Tru" meaning of courage. Please check out her blog here

Ways to Engage Your Senior

Give the courage to feel involved by engaging with your loved one. Our care partner tips this month offers few simple yet effective ways to interact with your senior.

  • Painting, drawing, and sculpting.
  • Karaoke for therapy and courage.
  • Skype, FaceTime, and video chatting.

Studies have shown that creating long-lasting memories with your loved one and providing them with the courage to engage can result in 73% less likely to develop mild cognitive impairment with seniors with LBD.

Epilepsy Treatment Shows Promise in DLB

Researchers in Japan published promising data on a Phase II clinical trial on an existing seizure medication in people with dementia with Lewy bodies. When used as an add-on treatment to levodopa, zonisamide improved motor symptoms in DLB without worsening psychiatric symptoms, a common side-effect in DLB. These findings require replication in a larger series of patients (i.e. Phase III trial) but suggest this medication may be potentially useful in a subset of DLB patients with motor symptoms that are less responsive to standard levodopa treatment.

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