The combination of cognitive, motor and behavioral symptoms can impose significant challenges on caregivers. The variable nature of LBD and the constellation of signs and symptoms that accumulate over time, make caring for affected individuals all the more burdensome.
Educating and supporting the primary caregiver is essential, and building a care team, when possible, can lessen the burden on any one individual. Low public awareness leaves many LBD family caregivers feeling isolated and their needs poorly understood. The caregiver’s well-being should also be watched closely, as the stress of providing ongoing care can lead to depression, burnout, and health problems.
The variety and intensity of care needs demands greater attention and allocation of resources to assist LBD families.
For additional information, read the expanded handout: Caregiver Impact